top of page

Websites

Podcast Recommendations

  • NORDpod (OffScrip Health)

  • RAREcast (Global Genes)

  • My rare disease (Katy Baker)

  • Because We Are Strong (Kristine Hoestermann and Theresa Thomas)

  • R is for Rare (Annie Watson)

  • Once Upon A Gene (Effie Parks)

Book Recommendations 

​Books about Rare Diseases:

  • Chasing My Cure: A Doctor's Race to Turn Hope into Action; A Memoir (David Fajgenbaum)

  • The Family Gene: A Mission to Turn My Deadly Inheritance into a Hopeful Future (Joselin Linder)​

  • The Forever Fix: Gene Therapy and the Boy Who Saved It (Ricki Lewis)

  • More Than You Can Handle: A Rare Disease, a Family in Crisis, and the Cutting-Edge Medicine That Cured the Incurable (Miguel Sancho)

  • Carville's Cure: Leprosy, Stigma, and the Fight for Justice (Pam Fessler)

  • The Lady's Handbook for Her Mysterious Illness: A Memoir (Sarah Ramey)

  • The Invisible Kingdom: Reimagining Chronic Illness (Meghan O'Rourke)

​

Recommendations from Guest Speak and ER Physician Michael Bryant

  • Never Split the Difference (Christopher Voss)

  • Influencer (Joseph Grenny)

  • Blink: The Power of Thinking Without Thinking (Malcolm Gladwell)

Do you have any resources to recommend? Tell us here!

Thanks for your Recommendation!

bottom of page